Mom had her swallowing test yesterday. It's not good. They fed her stuff and watched it try to go down her throat. They can see her muscles NOT working to move the food and drink to her stomach. This puts her at risk for pneumonia. They said things like "WHEN you get pneumonia they'll probably want to put in a feeding tube permanently." and "WHEN you can no longer speak they have machines that can speak for you." FUCK! Because of Stephen Hawking and my Google abilities I know that ALS causes severe muscle weakness and eventually... paralysis, but I'm stil not prepared for this. I well up thinking about looking into my mother's eyes and seeing her in there but not being able to hear her voice.
So today, after sleeping little and crying tons I came into work with a mission that had nothing to do with working. I was going to use my Google abilities and some good old fashioned desperation to see if anything is out there... any hope at all. I came away from my search with a small hope and a huge hatred for this country and the conservative assholes who have, in part, sentenced my mother to death. The answer to her ailment and to that of hundreds of thousands of others is.... stem cells. In China there is a neurologist who has been researching and testing stem cell transplants on people with neurological disease and injury. It's expensive. It's not a cure, just a postponement of the inevitable, but it's something. It's more than any US doctor would or could offer. And why China? Why not here? Because of the fucking pro-lifers. Yes, they use fetal cells for transplants. Yes, those cells come from abortions. No, I don't give a flying fuck about unborn babies. It's funny, the same flag waving idiots who shout "take care of our own before we give money to other countries!" also say "screw the living, save the unborn!" It's so incredibly backwards. By their own logic we should be worried about the people already living and dying and suffering.
If I bought into the whole 5 stages of grief I would assume I'd just entered the "blind rage" stage. I fucking hate this place. I hate. HATE! Pretty much everyone in existence is an asshole or an idiot or both. The one person I think has shit right is sick and dying and her health and future is being shit on by these religious fanatics that have hi-jacked our fucking planet. So now I'm sitting here thinking about how to raise $30K to get her to China and get her treated with abortion cells.
The treatment is far fetched. The case studies they have posted on their site show mild improvements in muscle strength and speech. They show that without additional treatments the patients eventually begin to lose muscle again. The answer... do this shit in America so we don't have to go to fucking Beijing to get proper treatment.
It's not a cure. I keep telling myself that, but I feel better today than I have in a long time. It's something to hold on to. How on earth I will ever be able to raise that kind of money is beyond me, but I'm sure as shit going to try. Even if it buys only months of mobility for my mom it would be worth every penny.
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